UK Biobank: a model for public engagement?

Whilst in other applications of genetic technology the public debate has begun only when a piece of research has been completed, public consultations on biobanking began in 2000, before the funding for UK Biobank was even agreed, and have continued throughout its development. UK Biobank has obvious attractions for the British public. It is being set up specifically as a resource for research into common diseases that are relevant to everyone, rather than rare genetic disorders unknown to most. The only diseases mentioned on the ‘about UK Biobank’ web page are cancer, heart disease, diabetes and Alzheimer’s disease. The public are encouraged to be involved by the promise of ‘a better life for our children and grandchildren’ and ‘enormous potential to result in improvements to health of the UK population’ through the National Health Service.